Tuesday, October 28, 2008
bad news... please read, please pray.
Despite removing all tumor visible by way of MRI, etc., the tumor has returned, and is bigger than when they removed it 10 weeks ago (about the size of an eyeball) . That was his fourth surgery, and most invasive. He also has gone through 6.5 weeks of radiation. According to the doctor, they've exhausted these possibilities. The tumor has returned after each surgery, and has grown back despite the radiation... The type of tumor JD has is very rare, and the situations of recurring like it has done, even more so. There are only a handful of instances like this in the world, apparently...
Needless to say, we're all pretty shaken up by this news. It's terrifying to not have an immediate game plan, to have a doctor tell you that they're just not sure where to go from here yet. The next step will be for them to biopsy the tumor, and from the info that brings, they'll go from there. He said that the tumor is no longer the grade 2 tumor it was before, but is more aggresive. So, we need to develop a plan of action quickly.
We go on Thursday to see the pediatric oncologist.
Please, please, please be praying for our family. For wisdom for the doctors on what to do, where to go from here. Chemotherapy may be an option, but we'll know more after speaking with the oncologist and the biospy of the tumor. Pray for wisdom for my parents, as they make decisions based on the info recieved. Pray for answers, for hope, for peace, for comfort.
As terrifying as this has been from day one, we've now entered a new ball game. Please, just pray. Feel free to put JD on any and all prayer chains you may know of.
Thank you to all who have lifted us up, encouraged us, helped us through the last 4 years of this, and to those who are praying now. We love you all, and are so blessed to be surrounded by such friends and family!
Monday, October 27, 2008
talk about productivity!
Today I:
- Cleaned out Corban's dresser
- Sorted too small clothes, too big clothes, current clothes, PJ's, short sleeve, long sleeve, etc.
- Drug the massive tote of baby clothes from the guest bedroom to my room
- Sorted by sleeper, onesies, outfits, etc.
- Pulled out all gender-neutral items, and all white onesies and socks
- Taped off the shower, vanity, etc. in the bathroom
and, drum roll please...
- I finally primed my bathroom. Painting soon to follow... hopefully tonight, if the current coat dries in time, and if I make it awake past 7:30.
I realized a few things while doing these things though. One, my son has/had a tremendous amount of clothes. There were way too many newborn or 0-3 months items that still had tags on them, or that I had no recollection of him ever wearing. Two, Corban has a good amount of 24 month and 2T winter clothes. This would be fabulous, if he didn't wear a size 12 months. And three, I hate primer. It stinks, it's sticky, and it's stuck all over my hands, clothes, watch, etc.
We have company coming tomorrow, and while I made good headway today, there's a lot to be done before it's guest-worthy! But my son is refusing an afternoon nap (due to a late morning nap- two days in a row... I fear an end of 2 naps is around the corner....). So I'm out!
Sunday, October 26, 2008
rrrrrrrrrrrrandom.
Tuesday, October 21, 2008
Monday, October 20, 2008
Name That... Baby? and other ramblings...
Anyway- we got a really great profile shot of Baby Girl McG today, as you can see. The Ultrasound Tech tried to get a 3-D shot, but she (baby girl) had already covered her face back up with her hands. At one point during the ultrasound, she had a hand AND a foot covering her face. Silly girl. :) Silly, nameless girl. sigh. I wish we could figure out a name! We have less than 3 months to figure it out... and I think I've read every book on the market and looked at every website under the sun three times. Ah, well, it'll happen. We'll find one. Or at worst, settle on one when she gets here.
Here are names that have been on, but exed off of 'the list', to give you an idea of the style that we like:
Adeline
Nora
Cate
Ella
Hadley
Emilia
Eden
Anyone have any great suggestions? Names you considered using? Names you like but can't use because you know someone named it, or who is going to use it, etc? If I don't know you in real life, or see you less than once a year, names you used? I'm desperate! :) Even if you don't have a name to offer me, at least say hello if you stopped by and read this. I'm still learning the ropes of this blogger business, and have no idea how to see if anyone is reading this other than by comments and those who are 'followers'. So- comment away. Oh- and thanks in advance for suggestions.